The parents of Samuel Coles have started a new petition via Change.com. The reason is that he has Batten disease. This is how his mother describes the situation.
"He’s five years old and obsessed with cars. Two months ago, we were given the devastating news that Samuel had been diagnosed with CLN2 Batten disease. It’s a rare disease that affects children. We’ve been told without treatment in the next few months our baby will lose his ability to walk and to talk as well as to eat. Eventually he’ll lose his vision and will develop childhood dementia before he is six. We’ve been told that Sam’s life expectancy is just six to twelve years old."
This must be a terrible situation for any parent. So I looked up Batten disease to see exactly what it was. What I discovered was not 'rare' or particularly 'new'. It seemed to describe what was happening to a large number of young children in recent decades. This is what the Batten Disease Family Association say.
What are Neuronal Ceroid Lipofuscinoses (NCLs)?
Commonly referred to as Batten disease, the Neuronal Ceroid Lipofuscinoses (NCLs) denote several different genetic life-limiting neurodegenerative diseases that share similar features. Although the disease was initially recognised in 1903 by Dr Frederik Batten, it wasn’t until 1995 that the first genes causing NCL were identified. Since then over 400 mutations in 13 different genes have been described that cause the various forms of NCL disease.
Wikipedia describes a long list of these diseases. Infantile neuronal ceroid (INCL); Late infantile NCL (LINCL); Juvenile NCL (JNCL), Adult NCL; Finnish variant of late infantile NCL (fLINCL); Variant of the late infantile NCL; Turkish variant of late infantile NCL: CLN7 or MFSD8; Northern epilepsy: CLN8; Late infantile NCL: CLN10 or CTSD and Infantile osteopetrosis. It says of all of them.
"Batten disease is a fatal disease of the nervous system that typically begins in childhood. Onset of symptoms is usually between 5 and 10 years of age. Often it is autosomal recessive. It is the most common form of a group of disorders called the neuronal ceroid lipofuscinoses (NCLs)."
The problem I have with this is that we are now hearing it too often, different conditions, with complicated, highly technical explanations. It is time that conventional medicine began to ask some important questions.
"There is a hope for us. A treatment called Cerliponase Alfa has been developed that’s been shown to slow down the progression of this cruel disease. Unfortunately, NICE is currently recommending that the drug is not funded by the NHS. That’s why my partner and I are backing this petition calling on NICE and NHS England to find a way to make this drug available to Samuel and other children like him. Will you join me?"
So another question is about the treatment that is usually available for these 'new' and 'rare' condition, which offer so much hope to distressed parents. Why are they usually unavailable? Why are they invariably so expensive?
Let me try to assist in answering some of these questions!
What are the affects of mercury and aluminium poisoning? The MedicineNet. com website says this about mercury poisoning.
"For fetuses, infants, and children, the primary health effect of methylmercury is impaired neurological development."
The website talks about the sources of mercury, from rocks, from fish, from the air - but never from mercury that is injected directly into our bloodstream! A curious omission? A careless omission? Please read the rest of the article, it explains some of the effects of mercury poisoning "mercury exposure at high levels can harm the brain, heart, kidneys, lungs, and immune system of people of all ages" and in particular note the rather close likeness to some of Samuel's symptoms.
What are the effects of aluminium poisoning? Allow homeopathy to help in doing so. Homeopathy works by treating 'like' with 'like', that is, a substance that is know to cause a symptom can cure that symptom. These are a few of symptoms that the remedy alumina (made from aluminium) treats.
"He’s five years old and obsessed with cars. Two months ago, we were given the devastating news that Samuel had been diagnosed with CLN2 Batten disease. It’s a rare disease that affects children. We’ve been told without treatment in the next few months our baby will lose his ability to walk and to talk as well as to eat. Eventually he’ll lose his vision and will develop childhood dementia before he is six. We’ve been told that Sam’s life expectancy is just six to twelve years old."
This must be a terrible situation for any parent. So I looked up Batten disease to see exactly what it was. What I discovered was not 'rare' or particularly 'new'. It seemed to describe what was happening to a large number of young children in recent decades. This is what the Batten Disease Family Association say.
What are Neuronal Ceroid Lipofuscinoses (NCLs)?
Commonly referred to as Batten disease, the Neuronal Ceroid Lipofuscinoses (NCLs) denote several different genetic life-limiting neurodegenerative diseases that share similar features. Although the disease was initially recognised in 1903 by Dr Frederik Batten, it wasn’t until 1995 that the first genes causing NCL were identified. Since then over 400 mutations in 13 different genes have been described that cause the various forms of NCL disease.
Wikipedia describes a long list of these diseases. Infantile neuronal ceroid (INCL); Late infantile NCL (LINCL); Juvenile NCL (JNCL), Adult NCL; Finnish variant of late infantile NCL (fLINCL); Variant of the late infantile NCL; Turkish variant of late infantile NCL: CLN7 or MFSD8; Northern epilepsy: CLN8; Late infantile NCL: CLN10 or CTSD and Infantile osteopetrosis. It says of all of them.
"Batten disease is a fatal disease of the nervous system that typically begins in childhood. Onset of symptoms is usually between 5 and 10 years of age. Often it is autosomal recessive. It is the most common form of a group of disorders called the neuronal ceroid lipofuscinoses (NCLs)."
The problem I have with this is that we are now hearing it too often, different conditions, with complicated, highly technical explanations. It is time that conventional medicine began to ask some important questions.
- Why are there so many of these 'new' and 'rare' diseases, previously unheard of?
- Why are they described as 'genetic' when they are 'new' - where have these 'faulty genes' suddenly appeared from, and why have they suddenly become 'faulty'?
- Why are all the diseases primarily concerned with the nervous system, and the brain in particular?
- Why do they all appear to strike down previously fit and healthy children?
- Why is the cause of these diseases usually described as 'unknown'?
- Why, when talking about the cause of the disease, do doctors present a description of what is happening, and not a explanation for WHY it is happening, that is, why is it that a normal child does not continue developing normally?
"There is a hope for us. A treatment called Cerliponase Alfa has been developed that’s been shown to slow down the progression of this cruel disease. Unfortunately, NICE is currently recommending that the drug is not funded by the NHS. That’s why my partner and I are backing this petition calling on NICE and NHS England to find a way to make this drug available to Samuel and other children like him. Will you join me?"
So another question is about the treatment that is usually available for these 'new' and 'rare' condition, which offer so much hope to distressed parents. Why are they usually unavailable? Why are they invariably so expensive?
Let me try to assist in answering some of these questions!
- What happens to most normal, healthy, fit babies? They are routinely given the DPT vaccination.
- What happens to most normal, healthy, fit children? They are routinely given the MMR vaccination.
What are the affects of mercury and aluminium poisoning? The MedicineNet. com website says this about mercury poisoning.
"For fetuses, infants, and children, the primary health effect of methylmercury is impaired neurological development."
The website talks about the sources of mercury, from rocks, from fish, from the air - but never from mercury that is injected directly into our bloodstream! A curious omission? A careless omission? Please read the rest of the article, it explains some of the effects of mercury poisoning "mercury exposure at high levels can harm the brain, heart, kidneys, lungs, and immune system of people of all ages" and in particular note the rather close likeness to some of Samuel's symptoms.
What are the effects of aluminium poisoning? Allow homeopathy to help in doing so. Homeopathy works by treating 'like' with 'like', that is, a substance that is know to cause a symptom can cure that symptom. These are a few of symptoms that the remedy alumina (made from aluminium) treats.
- Vagueness
- Seems closed, self protective
- Slowness, slow comprehension, dullness
- Answers slowly and vague. Seems not involved, speaks monotonously
- Restricted imagination, irresolution, incomprehension
- Sensation of being hurried, cannot stand being hurried
- Cannot do two things at the same time
- Aversion to conversation, cannot comprehend what everybody is talking about
- Confusion of identity. "Who am I?"
- Everything seems unreal
- Anxiety in the morning on waking
I am not familiar with Batten disease, but these symptoms appear to be similar (or like) those described in Samuel's parents petition. They certainly seem similar to Autism - a relatively 'new' disease, but certainly no longer a 'rare' disease - a disease that strikes at children who, for the first few months of their lives, were normal, healthy and fit. So let's try to answer those questions again.
- Why are there so many of these 'new' and 'rare' diseases, previously unheard of? Our children today are routinely vaccinated, and they now receive more vaccinations than ever before, all of which contain one of these poisons.
- Why are they described as 'genetic' when they are 'new' - where have these 'faulty genes' suddenly appeared from, and why have they suddenly become 'faulty'? Conventional medicine appears to like the 'gene' explanation, 'genetics' has become the most favoured explanation of the cause of a variety of diseases.
- Why are all the diseases primarily concerned with the nervous system, and the brain in particular? The diseases are the direct result of injecting poison into the bloodstream of young babies and children.
- Why do they all appear to strike down previously fit and healthy children? Children are not vaccinated until they are several months old. Their development is normal up to the point they have one too many vaccinations, when they can no longer cope with the poison in their bloodstream.
- Why is the cause of these diseases usually described as 'unknown'? Conventional medicine is either unable, unwilling, or just too embarrassed to admit that they are causing these 'new' and 'rare' diseases.
- Why, when talking about the cause of the disease, do doctors present a description of what is happening, and not a explanation for WHY it is happening, that is, why is it that a normal child does not continue developing normally? These are descriptions of the result of poisoning, with mercury, aluminium, or some other poisons, routinely used as an ingredient of vaccines. It is the vaccine poisons that start the abnormal processes that conventional medicine use to describe the disease.
The availability of treatment is typical of the conventional medical establishment, and its reliance on dangerous pharmaceutical drugs and vaccines. First, they vaccinate, and profit from doing so. Second, the vaccination causes illness, and more treatments are presented to treat these iatrogenic illnesses - and they profit from these treatments too.
Conventional medicine is a merry-go-round,. Following each new treatment one illness leads to another, and each subsequent treatment makes us that much sicker. Soon we have multiple illnesses. But there is a treatment for everything, although a cure for very little.
I have every every sympathy for Samuel and his parents. They face a dreadful situation. Perhaps they should seek homeopathic assistance, it might offer more effective, and certainly safer treatment.
But more than anything I despair of the hold the conventional medicine has on most people, the confidence and trust placed in doctors, on conventional medical treatment, on pharmaceutical drugs and vaccines. We believe their propaganda. Medical science is winning the war against disease. Vaccines are entirely safe. Pharmaceutical drugs have side effects, but the benefits outweigh the disadvantages.
But more than anything I despair of the hold the conventional medicine has on most people, the confidence and trust placed in doctors, on conventional medical treatment, on pharmaceutical drugs and vaccines. We believe their propaganda. Medical science is winning the war against disease. Vaccines are entirely safe. Pharmaceutical drugs have side effects, but the benefits outweigh the disadvantages.
Ploughing more money into the NHS, asking for more of the same medicine, invites further increases in the already epidemic levels of chronic disease, and more 'new' and 'rare' diseases, the causes of which will remain 'unknown', and the treatment of which will be even more expensive, although no more effective.
