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Wednesday 25 April 2018

New and Rare Childhood Diseases. Where do they come from? Alfie Evans, Alfie Dingley, Charlie Gard?

Anyone listening to the news at the moment will know about the plight of Alfie Evans. Indeed, children with rare and deadly childhood diseases seem to be regularly featured in the mainstream media (MSM) these days. I have written about two of them before, Charlie Gard in July 2017, and Alfie Dingley in February 2018. In these cases, and many others that we have not heard so much about, the situation appears to be similar, if not the same.
  • The disease is new, rare, deadly, and often without previously being known.
  • The cause of the disease is invariablyunknown to conventional medicine.
  • There is no (conventional) medical treatment for the disease.
Usually, the discussion around each case is about life support and treatment, keeping the child alive, questioning whether the child might have more chance of getting better treatment outside the UK, with parents going through the courts, and taking on the medical establishment, in order to decide on such issues. The crucial and most important question, however, is never asked within conventional medicine or the MSM.

What is the cause of these new, rare and deadly diseases; and why is there no treatment?

Without asking this basic question it is likely that many more cases, involving different parents with as yet unborn babies, or as yet healthy young infants, will continue to happen. This latter point is important. Most of these children with these conditions are born normally, and developed normally for many months before being 'struck down' with the disease. Moreover, the symptoms of these 'new, rare and deadly' childhood diseases are often strangely similar, if not identical. They usually involve seizures, epilepsy, neurological damage and organ failure. So what are these rare childhood diseases, and how many of them are there?

Orphanet describes itself as "the portal for rare diseases and orphan drugs", and in answering the question about how many rare diseases there are says:

               'There are thousands of rare diseases. To date, six to seven thousand rare diseases have been discovered and new diseases are regularly described in medical literature. The number of rare diseases also depends on the degree of specificity used when classifying the different entities/disorders."

In answer to the question - what is the origin or cause of these rare diseases Orphanet says that some are genetic, some are 'rare forms' of infectious disease, such as auto-immune diseases and rare cancers, and that "to date, the cause remains unknown for many rare diseases." It says that most of them are serious, often chronic and progressive diseases, that signs may be observed at birth, but are more usually observed during infancy or childhood, and occasionally in adulthood.

The International Children's Palliative Care Network outlines just 10 of the 1,000's of these rare childhood diseases. This is how they they described them. In reading these short descriptions note the colour coding following in relation to their causation, symptoms and treatments.:
  • most do not begin until infancy or later.
  • many are nuero-degenerative conditions, and/or involve organ failure.
  • usually no cause is mentioned, or the cause given is not a cause but a description of what is happening; or alternatively that the cause is 'inherited'' (Yet how can there be genetic causes when these are 'new diseases, and the parents, and previous family generations have not had the disease?)
  • There is never any treatment or cure.
Batten Disease
This affects boys and girls. Symptoms ... usually start between the ages of 5 and 10 years, and include loss of vision or seizures. Over time there is a loss of muscle control and some wasting of brain tissue. Progressive sight loss and dementia occur. There is no treatment available to cure or slow the progression of Batten disease and it is always fatal, with death usually in the late teens or early twenties.

Duchenne muscular dystrophy
DMD affects the use of voluntary muscles in the body and is inherited, primarily affecting boys of all ethnic backgrounds. Normal development occurs initially but between the ages of 2 and 6 the affected child may have difficulty walking, running or climbing and struggle to lift their head due to a weak neck. Eventually the heart and breathing muscles are affected which leads to difficulty breathing, fatigue and heart problems due to an enlarged heart. Even with the best medical treatment young men with DMD seldom live beyond their early thirties.

CANDLE (Chronic Atypical Neutrophilic Dermatosis with Lipodystrophy and 
Elevated Temperature) Syndrome
This is a very rare autoinflammatory disease. It is an inherited, genetic condition. Patients have recurring fevers, beginning in infancy, which happen almost daily. They also present with delayed development, skin rashes and unique facial features such as thicker lips, swollen eyelids. Children develop swelling around the eye sockets, clubbing of fingers and toes and gradual enlargement of the liver. There is no effective therapeutic treatment for CANDLE syndrome and life expectancy is compromised with death often resulting from organ inflammation. Quality of life is also severely affected.

Childhood Interstitial Lung Disease or chILD
This is a broad term for a group of rare lung diseases that can affect babies, children and teens. The disease harms the lungs by damaging the tissues that surround the alveoli and bronchial tubes and sometimes the air sacs and airways. Lung function is decreased, blood oxygen levels reduced and the breathing process is disturbed. The disease has only been researched in the last decade and it is not
known how many children have each type of chILD. Severity differs according to the type of
the disease but can lead to early death. There is no cure.

Ehlers-Danlos syndromes
These are a group of genetic disorders which share common features including easy bruising, joint hypermobility, skin that stretches easily and weakness of tissues. Symptoms vary in severity according to the form of the disorder and treatment according to the particular manifestations present in the patient. Symptoms may also affect the autonomic nervous system used for breathing and urination.

Ellis Van Creveld syndrome
This is an inherited disorder due to an error on Chromosome 4 and is usually diagnosed at birth. Symptoms include short stature, short forearms and legs, extra fingers and toes, narrow chest with short ribs and malformed pelvis. 50–60% have a heart defect. Respiratory infections are common and about half those born with this syndrome die in early infancy.

Gaucher disease
Types 1, 2 and 3 is an inherited storage disorder where fatty substances build up to toxic levels in the spleen, liver, lungs, bone marrow and sometimes in the brain. It is genetically inherited and affects both boys and girls. Symptoms of Gaucher Type 2 begin in infancy, usually by 3 months and these children seldom live past 3 years of age.

Krabbe Disease
This has 4 subtypes, each beginning at different ages. Type 1 is the most common and begins between 3–6 months. It affects the nerve cells and causes nerve cell damage, leading to loss of use of muscles, increasing muscle tone, arching of the back and damage to vision and hearing. There is no cure or way to stop the disease once it is in full swing and babies with the Type 1 infantile form usually die by 13 months.

This is a rare and aggressive childhood cancer of unknown cause. It usually affects children under the age of five, and can occur before a child is born, often spreading to other parts of the body before any symptoms become apparent. Long-term survival for children with advanced disease older than 18 months of age is poor and most of the survivors have long-term effects from the treatment.

Pompe disease
This is caused by a deficiency or lack of an enzyme, leading to the build-up of glycogen and has an infantile and late onset form. The former usually appears in the first few months of life where babies have trouble holding up their heads. The heart muscles become diseased and the heart becomes enlarged and weak. Babies with the infantile form usually die before their first birthday due to heart failure and respiratory weakness.

It is possible to read many more descriptions of these 'new' and 'rare' childhood diseases with similar symptoms. And it is important to note that many reflect the known 'side effects' of the DPT, MMR and other vaccines.
Most other vaccines have similar side effects. This is because the problem with all vaccines is the mercury, the aluminium, and the other toxic metals and other ingredients that are used.
  • So is the cause of these new, rare and deadly diseases really unknown? 
  • Or is the causation known, but the conventional medical establishment do not wish to admit culpability? 
If this is so we can expect to hear about many more Alfie Dingley's, Alfie Evans', and Charlie Gard's in future. Whenever  conventional medicine says that the cause of an illness or disease is "not known", or when they give a description of a disease rather than a cause, or when diseases are described (dismissed?) as 'genetic', I smell a cover-up.

I cannot prove the link, and it is unlikely that the pharmaceutical companies will ever want to fund research into a possible link. Even if they do they will be able to ensure that the 'scientific' findings are favourable. Conventional medicine still pretends it does not know the cause of Autism, even though all the evidence points towards the link with vaccines (except for a few 'studies' funded by the drug companies).

So beware conventional medicine! Any parent who wishes to use the 'precautionary' principle with their children health are well advised to stay clear of childhood vaccines, and indeed vaccination at any age. If these 'rare' and 'deadly' diseases are caused by vaccines, they are certainly far worse than diphtheria, or whooping cough, or measles, or mumps, or rubella - or indeed any other childhood illness (all of which are more safely and effectively treated with homeopathy anyway).

2 MAY 2018
Four Months of Critical Information is Missing from Alfie Evans’ Timeline
I am not alone in harbouring suspicions about the origins of these cases, and the links with the vaccines conventional medicine insists on giving all our young children. This Vaccine Truth article looks at the known medical history of Alfie Evans, taken from court documents. The most important fact is that Alfie was healthy when he was born. His death, less than two years later, needs a satisfactory explanation, but the public records leaves important gaps. What Vaccine Truth have done in this article is to fill in the gaps by adding what usually happens to children - the normal vaccine schedule. 
PLEASE READ THIS IMPORTANT ARTICLE, which goes into the detail. But the essential timeline is this.
  • 9 May 2016. Alfie was born. It was said that “Alfie was a happy smiling baby who seemed to be perfectly well.”
  • By 15 July 2016 the first evidence of an issue emerged. Alfie had a 'divergent squint'.
Between these two dates children usually receive the Pediacel or Infanrix IPV Hib, Preventer 13, Bexsero, Rotarix vaccine. Did Alfie have them? If so, why did the medical authorities not report it to the court? If he did not, will the medical authorities now confirm it. If they do so I will withdraw this blog.
  • 15  September 2016 Alfie had his 4 month development check by which time "it was clear that M already had some concerns about her son's general development.
Between the last two dates, Alfie would have been scheduled to have two more vaccinations, the DPT vaccines. Again, this was not mentioned in the court documents. Did he have them? And if so, why did the medical authorities not report this? If he did not have them perhaps the medical authorities will confirm this (and again, I will pledge to withdraw this blog).

Killing a child with a vaccine that has been known for decades to damage young children, often leading to death, is one thing. To cover this up is another.
Everyone needs to know the truth!