Wednesday, 25 April 2018

New and Rare Childhood Diseases. Where do they come from? Alfie Evans, Alfie Dingley, Charlie Gard?

Anyone listening to the news at the moment will know about the plight of Alfie Evans. Indeed, children with rare and deadly childhood diseases seem to be regularly featured in the mainstream media these days. I have written about two of them before, Charlie Gard in July 2017, and Alfie Dingley in February 2018. In these cases, and many others that we do not hear about, the situation appears to be similar, if not the same.
  • The disease is new, rare, deadly, and often without diagnosis.
  • The cause of the disease is unknown to conventional medicine.
  • There is no (conventional) treatment for the disease.
Usually, the discussion around each case is about life support and treatment, keeping the child alive, questioning whether the child might get better treatment outside the UK, and parents going through the courts, taking on the medical establishment in order to decide on such issues. The crucial and most important question, however, is never asked, as it rarely is within conventional medicine or the mainstream media.

What is causing these new, rare and deadly diseases, and why is there no treatment?

Without asking this basic question it is likely that dimmest cases, involving different parents with as yet unborn babies, or as yet healthy young infants, will continue to happen. The latter is an important statement. Most of these children are born normally, and developed normally for many months before being 'struck down' with the disease. Moreover, the symptoms of these 'new, rare and deadly' childhood diseases are often similar, if not identical. They involve seizures, epilepsy, neurological damage and organ failure. So what are these rare childhood diseases, and how many of them are there?

Orphanet describes itself as "the portal for rare diseases and orphan drugs", and in answering the question about how many rare diseases there are it says:

               'There are thousands of rare diseases. To date, six to seven thousand rare diseases have been discovered and new diseases are regularly described in medical literature. The number of rare diseases also depends on the degree of specificity used when classifying the different entities/disorders."

In answer to the question - what is the origin or cause of these rare diseases Orphanet says that some are genetic, some are 'rare forms' of infectious disease, such as auto-immune diseases and rare cancers, and that "to date, the cause remains unknown for many rare diseases." It says that most are serious, often chronic and progressive diseases, that signs may be observed at birth, but are more usually observed during infancy or childhood, and occasionally in adulthood.

The International Children's Palliative Care Network outlines just 10 of the 1,000's of these rare childhood diseases. This is how they they are described. In reading these short descriptions note the following about the causes, symptoms and treatments mentioned:
  • most do not begin until infancy or later.
  • many are nearo-degenerative conditions or organ failure.
  • usually no cause is mentioned, or the cause given is not a cause but a description of what is happening, or the cause is 'inherited'' (How can there be an 'inherited' cause when these are 'new diseases, and parents, and previous generations of the family have not had the disease).
  • There is never any treatment or cure.
Batten Disease
This affects boys and girls. Symptoms ... usually start between the ages of 5 and 10 years, and include loss of vision or seizures. Over time there is a loss of muscle control and some wasting of brain tissue. Progressive sight loss and dementia occur. There is no treatment available to cure or slow the progression of Batten disease and it is always fatal, with death usually in the late teens or early twenties.

Duchenne muscular dystrophy
DMD affects the use of voluntary muscles in the body and is inherited, primarily affecting boys of all ethnic backgrounds. Normal development occurs initially but between the ages of 2 and 6 the affected child may have difficulty walking, running or climbing and struggle to lift their head due to a weak neck. Eventually the heart and breathing muscles are affected which leads to difficulty breathing, fatigue and heart problems due to an enlarged heart. Even with the best medical treatment young men with DMD seldom live beyond their early thirties.

CANDLE (Chronic Atypical Neutrophilic Dermatosis with Lipodystrophy and 
Elevated Temperature) Syndrome
This is a very rare autoinflammatory disease. It is an inherited, genetic condition. Patients have recurring fevers, beginning in infancy, which happen almost daily. They also present with delayed development, skin rashes and unique facial features such as thicker lips, swollen eyelids. Children develop swelling around the eye sockets, clubbing of fingers and toes and gradual enlargement of the liver. There is no effective therapeutic treatment for CANDLE syndrome and life expectancy is compromised with death often resulting from organ inflammation. Quality of life is also severely affected.

Childhood Interstitial Lung Disease or chILD
This is a broad term for a group of rare lung diseases that can affect babies, children and teens. The disease harms the lungs by damaging the tissues that surround the alveoli and bronchial tubes and sometimes the air sacs and airways. Lung function is decreased, blood oxygen levels reduced and the breathing process is disturbed. The disease has only been researched in the last decade and it is not
known how many children have each type of chILD. Severity differs according to the type of
the disease but can lead to early death. There is no cure.

Ehlers-Danlos syndromes
These are a group of genetic disorders which share common features including easy bruising, joint hypermobility, skin that stretches easily and weakness of tissues. Symptoms vary in severity according to the form of the disorder and treatment according to the particular manifestations present in the patient. Symptoms may also affect the autonomic nervous system used for breathing and urination.

Ellis Van Creveld syndrome
This is an inherited disorder due to an error on Chromosome 4 and is usually diagnosed at birth. Symptoms include short stature, short forearms and legs, extra fingers and toes, narrow chest with short ribs and malformed pelvis. 50–60% have a heart defect. Respiratory infections are common and about half those born with this syndrome die in early infancy.

Gaucher disease
Types 1, 2 and 3 is an inherited storage disorder where fatty substances build up to toxic levels in the spleen, liver, lungs, bone marrow and sometimes in the brain. It is genetically inherited and affects both boys and girls. Symptoms of Gaucher Type 2 begin in infancy, usually by 3 months and these children seldom live past 3 years of age.

Krabbe Disease
This has 4 subtypes, each beginning at different ages. Type 1 is the most common and begins between 3–6 months. It affects the nerve cells and causes nerve cell damage, leading to loss of use of muscles, increasing muscle tone, arching of the back and damage to vision and hearing. There is no cure or way to stop the disease once it is in full swing and babies with the Type 1 infantile form usually die by 13 months.

Neuroblastoma
This is a rare and aggressive childhood cancer of unknown cause. It usually affects children under the age of five, and can occur before a child is born, often spreading to other parts of the body before any symptoms become apparent. Long-term survival for children with advanced disease older than 18 months of age is poor and most of the survivors have long-term effects from the treatment.

Pompe disease
This is caused by a deficiency or lack of an enzyme, leading to the build-up of glycogen and has an infantile and late onset form. The former usually appears in the first few months of life where babies have trouble holding up their heads. The heart muscles become diseased and the heart becomes enlarged and weak. Babies with the infantile form usually die before their first birthday due to heart failure and respiratory weakness.

I have read many more descriptions of these rare childhood diseases, and the symptoms seem to be similar. Indeed, many reflect the known 'side effects' of the DPT and MMR vaccines.
Most other vaccines have similar side effects. This is because the problem with all vaccines is the mercury, the aluminium, and the other toxic metals that are part of the ingredients.


So is the cause of these new, rare and deadly diseases really unknown? Or is the cause of these diseases known but the conventional medical establishment do not wish to admit culpability. If this is so we can expect to hear about many more Alfie Dingley's, Alfie Evans', and Charlie Gard's in future. Whenever  conventional medicine says that the cause of an illness or disease is "not known", or when they provide a description as a cause, or when they dismiss it as 'genetic', I smell a cover-up.

I cannot prove the link, and it is unlikely that the pharmaceutical companies will ever fund research into a possible link (or if they do they will ensure that the 'scientific' findings are favourable). Conventional medicine still pretends that it does not know the cause of Autism, even though all the evidence points towards the link with vaccines (except for a few 'studies' funded by the drug companies).

So beware, any parent who wishes to use the 'precautionary' principle with their children health. They would be well advised to stay clear of childhood, and indeed vaccination at any age. If these 'rare' and 'deadly' diseases are caused by vaccines, they are certainly worse than diphtheria  whooping cough, measles, mumps, and rubella - and any other traditional childhood illness, all of which are more safely and effectively treated with homeopathy.

POSTSCRIPT 2 MAY 2018
Four Months of Critical Information is Missing from Alfie Evans’ Timeline
I am not alone in harbouring my suspicions about the origins of these cases, and the links with the vaccines conventional medicine insists on giving all our young children. This Vaccine Truth article looks at the known medical history of Alfie Evans, from documents submitted to the courts. The most important fact is that Alfie was healthy when he was born,  His death, less than two years later, needs therefore to be satisfactorily explained, but the public records leave important gaps. What Vaccine Truth have done in this article is to fill in the gaps by adding what usually happens to children - the normal vaccine schedule. PLEASE READ THIS IMPORTANT ARTICLE, which goes into the detail. But the essential timeline is this.

  • 9 May 2016. Alfie was born. Tt was said that “Alfie was a happy smiling baby who seemed to be perfectly well.”
  • By 15 July 2016 the first evidence of an issue emerged. Alfie had a 'divergent squint'.
Between these two dates children usually receive thew Pediacel or Infanrix IPV Hib, Preventer 13, Bexsero, Rotarix vaccine. Did Alfie have them? If so, why did the medical authorities not report it to the court? If he did not, on the basis of this accusation, will they now confirm it (and I will withdraw this blog).
  • 15  September 2016 Alfie had his 4 month development check by which time "it was clear that M already had some concerns about her son's general development.
Between the last two dates, Alfie would have been scheduled to have two more vaccinations (which were once called the DPT vaccine). Again, this was not mentioned in the court documents. Did he have them, and if so, why did the medical authorities not report it? If he did not, on the basis of this accusation, will they now confirm it (and again, I will pledge to withdraw this blog).

Killing a child with a vaccine that has been known for decades to damage and kill young children is one thing. To cover it up is another.