New and Rare Childhood Diseases. Where do they come from? Alfie Evans, Alfie Dingley, Charlie Gard?

Anyone listening to the news at the moment will know about the plight of Alfie Evans. Indeed, children with rare and deadly childhood diseases seem to be regularly featured in the mainstream media (MSM) these days. I have written about two of them before, Charlie Gard in July 2017, and Alfie Dingley in February 2018. In these cases, and many others that we have not heard so much about, the situation appears to be similar, if not the same.

• The disease is new, rare, deadly, and often without previously being known.
• The cause of the disease is invariablyunknown to conventional medicine.
• There is no (conventional) medical treatment for the disease.

Usually, the discussion around each case is about life support and treatment, keeping the child alive, questioning whether the child might have more chance of getting better treatment outside the UK, with parents going through the courts, and taking on the medical establishment, in order to decide on such issues. The crucial and most important question, however, is never asked within conventional medicine or the MSM.

What is the cause of these new, rare and deadly diseases; and why is there no treatment?

Without asking this basic question it is likely that many more cases, involving different parents with as yet unborn babies, or as yet healthy young infants, will continue to happen. This latter point is important. Most of these children with these conditions are born normally, and developed normally for many months before being 'struck down' with the disease. Moreover, the symptoms of these 'new, rare and deadly' childhood diseases are often strangely similar, if not identical. They usually involve seizures, epilepsy, neurological damage and organ failure. So what are these rare childhood diseases, and how many of them are there?

Orphanet describes itself as "the portal for rare diseases and orphan drugs", and in answering the question about how many rare diseases there are says:

               'There are thousands of rare diseases. To date, six to seven thousand rare diseases have been discovered and new diseases are regularly described in medical literature. The number of rare diseases also depends on the degree of specificity used when classifying the different entities/disorders."

In answer to the question - what is the origin or cause of these rare diseases Orphanet says that some are genetic, some are 'rare forms' of infectious disease, such as auto-immune diseases and rare cancers, and that "to date, the cause remains unknown for many rare diseases." It says that most of them are serious, often chronic and progressive diseases, that signs may be observed at birth, but are more usually observed during infancy or childhood, and occasionally in adulthood.

The International Children's Palliative Care Network outlines just 10 of the 1,000's of these rare childhood diseases. This is how they they described them. In reading these short descriptions note the colour coding following in relation to their causation, symptoms and treatments.:

• most do not begin until infancy or later.
• many are nuero-degenerative conditions, and/or involve organ failure.
• usually no cause is mentioned, or the cause given is not a cause but a description of what is happening; or alternatively that the cause is 'inherited'' (Yet how can there be genetic causes when these are 'new diseases, and the parents, and previous family generations have not had the disease?)
• There is never any treatment or cure.

Batten Disease
This affects boys and girls. Symptoms ... usually start between the ages of 5 and 10 years, and include loss of vision or seizures. Over time there is a loss of muscle control and some wasting of brain tissue. Progressive sight loss and dementia occur. There is no treatment available to cure or slow the progression of Batten disease and it is always fatal, with death usually in the late teens or early twenties.

Duchenne muscular dystrophy
DMD affects the use of voluntary muscles in the body and is inherited, primarily affecting boys of all ethnic backgrounds. Normal development occurs initially but between the ages of 2 and 6 the affected child may have difficulty walking, running or climbing and struggle to lift their head due to a weak neck. Eventually the heart and breathing muscles are affected which leads to difficulty breathing, fatigue and heart problems due to an enlarged heart. Even with the best medical treatment young men with DMD seldom live beyond their early thirties.

CANDLE (Chronic Atypical Neutrophilic Dermatosis with Lipodystrophy and 
Elevated Temperature) Syndrome
This is a very rare autoinflammatory disease. It is an inherited, genetic condition. Patients have recurring fevers, beginning in infancy, which happen almost daily. They also present with delayed development, skin rashes and unique facial features such as thicker lips, swollen eyelids. Children develop swelling around the eye sockets, clubbing of fingers and toes and gradual enlargement of the liver. There is no effective therapeutic treatment for CANDLE syndrome and life expectancy is compromised with death often resulting from organ inflammation. Quality of life is also severely affected.

Childhood Interstitial Lung Disease or chILD
This is a broad term for a group of rare lung diseases that can affect babies, children and teens. The disease harms the lungs by damaging the tissues that surround the alveoli and bronchial tubes and sometimes the air sacs and airways. Lung function is decreased, blood oxygen levels reduced and the breathing process is disturbed. The disease has only been researched in the last decade and it is not
known how many children have each type of chILD. Severity differs according to the type of
the disease but can lead to early death. There is no cure.

Ehlers-Danlos syndromes
These are a group of genetic disorders which share common features including easy bruising, joint hypermobility, skin that stretches easily and weakness of tissues. Symptoms vary in severity according to the form of the disorder and treatment according to the particular manifestations present in the patient. Symptoms may also affect the autonomic nervous system used for breathing and urination.

Ellis Van Creveld syndrome
This is an inherited disorder due to an error on Chromosome 4 and is usually diagnosed at birth. Symptoms include short stature, short forearms and legs, extra fingers and toes, narrow chest with short ribs and malformed pelvis. 50–60% have a heart defect. Respiratory infections are common and about half those born with this syndrome die in early infancy.

Gaucher disease
Types 1, 2 and 3 is an inherited storage disorder where fatty substances build up to toxic levels in the spleen, liver, lungs, bone marrow and sometimes in the brain. It is genetically inherited and affects both boys and girls. Symptoms of Gaucher Type 2 begin in infancy, usually by 3 months and these children seldom live past 3 years of age.

Krabbe Disease
This has 4 subtypes, each beginning at different ages. Type 1 is the most common and begins between 3–6 months. It affects the nerve cells and causes nerve cell damage, leading to loss of use of muscles, increasing muscle tone, arching of the back and damage to vision and hearing. There is no cure or way to stop the disease once it is in full swing and babies with the Type 1 infantile form usually die by 13 months.

Neuroblastoma
This is a rare and aggressive childhood cancer of unknown cause. It usually affects children under the age of five, and can occur before a child is born, often spreading to other parts of the body before any symptoms become apparent. Long-term survival for children with advanced disease older than 18 months of age is poor and most of the survivors have long-term effects from the treatment.

Pompe disease
This is caused by a deficiency or lack of an enzyme, leading to the build-up of glycogen and has an infantile and late onset form. The former usually appears in the first few months of life where babies have trouble holding up their heads. The heart muscles become diseased and the heart becomes enlarged and weak. Babies with the infantile form usually die before their first birthday due to heart failure and respiratory weakness.

It is possible to read many more descriptions of these 'new' and 'rare' childhood diseases with similar symptoms. And it is important to note that many reflect the known 'side effects' of the DPT, MMR and other vaccines.

• I have written about the 'side effects' of the DPT vaccine here, taken from the PIL (the patient information leaflet that accompanies the vaccines) that I discovered several years ago. Have a look, and see the similarities!
• I have also written about the 'side effects' of the MMR vaccine here, again taken from the PIL leaflet. Have a look, and see the similarities!

Most other vaccines have similar side effects. This is because the problem with all vaccines is the mercury, the aluminium, and the other toxic metals and other ingredients that are used.

• So is the cause of these new, rare and deadly diseases really unknown? 
• Or is the causation known, but the conventional medical establishment do not wish to admit culpability? 

If this is so we can expect to hear about many more Alfie Dingley's, Alfie Evans', and Charlie Gard's in future. Whenever  conventional medicine says that the cause of an illness or disease is "not known", or when they give a description of a disease rather than a cause, or when diseases are described (dismissed?) as 'genetic', I smell a cover-up.

I cannot prove the link, and it is unlikely that the pharmaceutical companies will ever want to fund research into a possible link. Even if they do they will be able to ensure that the 'scientific' findings are favourable. Conventional medicine still pretends it does not know the cause of Autism, even though all the evidence points towards the link with vaccines (except for a few 'studies' funded by the drug companies).

So beware conventional medicine! Any parent who wishes to use the 'precautionary' principle with their children health are well advised to stay clear of childhood vaccines, and indeed vaccination at any age. If these 'rare' and 'deadly' diseases are caused by vaccines, they are certainly far worse than diphtheria, or whooping cough, or measles, or mumps, or rubella - or indeed any other childhood illness (all of which are more safely and effectively treated with homeopathy anyway).

POSTSCRIPT

2 MAY 2018
Four Months of Critical Information is Missing from Alfie Evans’ Timeline
I am not alone in harbouring suspicions about the origins of these cases, and the links with the vaccines conventional medicine insists on giving all our young children. This Vaccine Truth article looks at the known medical history of Alfie Evans, taken from court documents. The most important fact is that Alfie was healthy when he was born. His death, less than two years later, needs a satisfactory explanation, but the public records leaves important gaps. What Vaccine Truth have done in this article is to fill in the gaps by adding what usually happens to children - the normal vaccine schedule. 

 

PLEASE READ THIS IMPORTANT ARTICLE, which goes into the detail. But the essential timeline is this.

• 9 May 2016. Alfie was born. It was said that “Alfie was a happy smiling baby who seemed to be perfectly well.”

• By 15 July 2016 the first evidence of an issue emerged. Alfie had a 'divergent squint'.

Between these two dates children usually receive the Pediacel or Infanrix IPV Hib, Preventer 13, Bexsero, Rotarix vaccine. Did Alfie have them? If so, why did the medical authorities not report it to the court? If he did not, will the medical authorities now confirm it. If they do so I will withdraw this blog.

• 15  September 2016 Alfie had his 4 month development check by which time "it was clear that M already had some concerns about her son's general development.

Between the last two dates, Alfie would have been scheduled to have two more vaccinations, the DPT vaccines. Again, this was not mentioned in the court documents. Did he have them? And if so, why did the medical authorities not report this? If he did not have them perhaps the medical authorities will confirm this (and again, I will pledge to withdraw this blog).

Killing a child with a vaccine that has been known for decades to damage young children, often leading to death, is one thing. To cover this up is another.

 

Everyone needs to know the truth!

Charlie Gard. The role of Conventional Medicine in 'new' and 'rare' diseases

Charlie Gard suffers from a rare genetic condition called mitochondrial depletion syndrome. This causes brain damage and muscle depletion. I am deeply suspicious about what is going on, not least the role being played by the conventional medical establishment. I have three main questions.

• What is the cause of this new, 'rare', 'genetic' disease?
• What is the USA new treatment that is now being offered, and why is it being offered?
• Why is this treatment being rejected by the British medical establishment?

In particular, I want to raise the question of the role that has possibly been played by pharmaceutical drugs and vaccines.

When Charlie was born, on 4th August 2016, he was described as a 'perfectly healthy' baby, born at full term with a 'healthy weight'. However, Charlie's parents, Connie and Chris, began to realise that he had difficulty raising his head and supporting himself compared to other babies of similar age. In October 2016, as a result of his being lethargic and his shallow breathing he was admitted to the Great Ormond Street Hospital. Here, Charlie went through a multitude of tests and examinations, which all lead to the diagnosis - mitochondrial depletion syndrome.

This is a condition where the cells of the body cannot use energy appropriately, leading to organs and muscles being unable to function properly. Charlie's condition deteriorated rapidly. He was placed in intensive care and was soon being kept alive by medical technology. The conventional medical establishment stated that there is no known cure for the condition, that Charlie had no chance of recovery, so they proposed to turn off his life support. The parents disagreed, leading to a long court battle, going right up to the European Court of Human Rights, all of which found against the parents.

Charlie's parents fought hard against this medical prognosis, which was that there has been 'irreversible brain damage', that he could not see, hear or feel, that he would never be able to breathe unaided, or swallow food, and had little or no awareness of the world around him. It has also been reported that he had fits that were "difficult to control".

Charlie's parents refuted this prognosis, convinced that Charlie did respond to their voices and touch, that he had awareness of the world around him, and they did not accept the view of the medical profession, and the courts, that his condition was irreversible. Indeed, they searched for potential cures and contacted a US doctor who offered an experimental treatment, called nucleoside therapy, which might, he said, offer some hope of reversing the condition. The treatment was expensive, but through crowd funding the parents raised the money, over £1 million. The courts however, based on the evidence provided by medical staff at Great Ormond Street Hospital, refused to allow Charlie to be moved to the USA for the treatment, as it was not 'in his best interests'. Medical opinion was that Charlie’s brain was damaged beyond repair, and that it was not in his best interests to transport him to the USA, that the risks of the treatment outweighed any potential benefit. The said that the treatment would be futile, merely serving to prolong his suffering.

The situation was presented by the media in an emotional way. The 'dreadful plight' of the family produced massive public sympathy and the donation of an enormous amount of money to spay for Charlie's treatment. The 'worst nightmare' of the parents was contrasted with the 'heartless and unfeeling' NHS, unwilling or too inflexible to save the child's life.  There were comparisons drawn with another recent case, where the NHS refused treatment for another young child, Ashya King. In terms of issues of parental choice there are similarities.

In truth, the Charlie Gard situation was probably far more complex than the Ashy King case, involving the machinations of a medical establishment which I suspect would be involved in a massive cover-up. So I will now outline my three concerns, each of them long-standing issues being raised in this blog.

• What is the cause of this new, 'rare', 'genetic' disease?

Readers of this blog will know that I have always been sceptical of 'new' and 'rare' diseases. Invariably, these 'new' diseases are usually caused by pharmaceutical drugs and vaccines, especially when they are called 'syndromes'! So what is the cause of mitochondrial depletion syndrome? I looked at this on the Right Diagnosis webpage, and the various pages that it refers to. Yet, as so often with conventional medical, there is no description of 'cause' anywhere - just detailed and very intricate descriptions of various Mitochondrial diseases.

Describing what is happening, or going wrong, within the body is NOT the same as what is causing the body to function incorrectly.

So this case, if the mitochondria is not working properly, there is no reason given about WHY the mitochondria is misbehaving. The reason for the misbehaviour, the actual cause of the condition, is not addressed. Of course, it is said that the condition is 'genetic', which is a kind of catch-all, explain-everything formula so often used by conventional medicine to avoid having to look into the real causation.

So what is the cause of 'mitochondrial depletion system' and other mitochondrial syndromes? Are pharmaceutical drugs and vaccines involved? There is, of course, no evidence for this in the public domain. Conventional medicine is not looking to blame itself, and so will not even be looking at this possibility. But there are some indications or clues that it might be.

For instance, autism was a 'new' disease in the 1940's. There is strong evidence that autism and vaccines are linked, vigorously denied by the conventional medical establishment. One of the features of this link is that the child develops normally during the early months of their lives, but shortly after vaccination (often the DPT and MMR vaccines) the problems begins, development stops or is skewed from the normal.

This appears to be so in the Charlie Gard case. I have no idea whether Charlie was given a DPT (or 5-in-1) vaccine. Reading through the many hundreds of comments on their fundraising page I was surprised at how many people have said that their children, or someone in their family, has had this disease, or something similar. So perhaps it is not so 'rare' as the conventional medical establishment believes! If so, it is even more important to find the real cause of these 'new' diseases. But as I have outlined in other blogs, conventional medicine is NOT honest about the side effects of their vaccines, or other drugs. For instance, on the 5-in-1 vaccines, NHS Choices website says this:

               "The vaccine ... has few side effects, although it's common for babies to be a little irritable afterwards. They may also have a short-lived small bump, redness and swelling at the injection site." 

The Patient Information Leaflet (PIL) is considerably more revealing. Not many parents read it, not many are given it to read. It mentions allergic reactions, like 'difficulty breathing', and temporarily stopping breathing (apnoea). It mentions collapse, loss of consciousness, lack of awareness, and above all, fits. Certainly, some of these known (but unheralded) 'side effects' bear some relationship to what Charlie experienced? So is this worth investigating, is the vaccine a possible 'cause' of this 'new' disease?

Certainly, as far as the conventional medical establishment are concerned, they would admit no suggestion of iatrogenic causation! They don't want to be held responsible. It is easier to dismiss what has happened to Charlie as a 'new' disease, of 'unknown' cause, and of course, no known cure!

I have written about the DPT vaccine before. The conventional medical establishment are determined that patients should not know about the dangers, and the mainstream media support them in this cover-up. In my blog, written in 2013, I outlined the serous side effects of the DPT vaccine (which is merely an older version of the '5-in-1' vaccine) mentioned in the PIL, which includes seizures and difficult breathing. More pointedly it is the only known cause of Sudden Infant Death syndrome, which is rarely, if ever, mentioned to parents before their child is vaccinated! So the conventional medical establishment is well practiced in denying the effects of pharmaceutical drugs and vaccines, and if they are prepared to deny that 'death' is a side effect, they are more than likely to deny that the vaccine might be the cause of Charlie's problems!

• What is the USA new treatment that is now being offered, and why is it being offered?

No-one knows much about nucleoside therapy except that it is untested, unproven, yet massively expensive. Conventional medicine has always thrived on new treatments, new breakthroughs, cutting-edge technology that is going to save mankind from dreadful diseases. Such treatments are heralded when they are new, only to be found wanting with age, and usually discarded many years later when they are found to be ineffective, or dangerous. The 'Ages of Drugs', how pharmaceutical drugs pass from being a 'wonder cure' to being banned, is something I have blogged about in 2014. Each of these treatments serve a purpose for those companies or individuals peddling them. But rarely are they of any assistance to patients, or combating illness.

Moreover, conventional medicine is a profits-driven business. If there is money to be made there is usually someone within the conventional medical establishment to exploit it! So if a pharmaceutical drug or vaccine causes a rare disease, with no cure, there will be someone looking for and developing an expensive treatment to overcome it!

• Why is this treatment being rejected by the British medical establishment?

Yet the conventional medical establishment in Britain opposed the use of this particularly therapy. Why did it do so? There are already some reports that it has serious side effects. Yet, of course, we have all  been de-sensitised to the dangers of side effects, and we have all become too prepared meekly to accept these as 'unimportant'. And when a loved-one, especially a child, is dying these 'side effects' do not seem so important in comparison!

Yet however serious those side effects might be, conventional medicine does not usually prevent a treatment being tried. Indeed, it has a history of doing so, even when the treatments are known to be potentially harmful. But on this occasion they decided that the treatment would not work, and that it was not in Charlie's best interests! I merely ask - why?

It seems like the Gard family fell between two stools, two well-known aspects of the conventional medical establishment. One stool may have been concerned with denial and cover up, whilst the other was concerned with raising hopes, and making a substantial profit by doing so.

There may also have been a bit of 'professional pride' in what happened too. Doctors like to present themselves as experts, not as people who cause disease, or who sell expensive drugs and vaccines that purport to be effective when the track record of conventional medicine tells us they are probably not!

Charlie's parents fought hard to save their son's life, and despite their efforts, they failed. Yet there are important lessons that can be learnt from the Charlie Gard situation.

• No-one should ever have an illness, or contract a disease, without checking whether pharmaceutical drugs and vaccines have caused it. This is why I am developing my 'DIE's website (the Disease-Inducing-Effects of Pharmaceutical Drugs).
• When conventional medicine talks of 'new', or 'rare' diseases, be aware that pharmaceutical drugs may well be the cause, and consider what drugs the patient has been given prior to contracting it..
• When conventional medicine says that a disease has a 'genetic' cause, begin to ask questions, and research into your family's medical background. 
• When doctors talk about the 'causes' of a disease, but then merely offer a description of what is going wrong within the body, be deeply suspicious. Conventional medicine does know the difference, and there is probably a reason for them not wanting to focus on cause.